I know many of you have had questions about what has been going on today. Nicholas has been having problems with his blood sugar levels. For those of you that don’t know, Nicholas is hypoglycemic. This means that he has low blood sugar levels – the oposite of a diabetic. For the past few weeks, those levels have been dropping more frequently and the numbers have been lower than normal. He dropped to 35 last week and felt as though he would pass out.
Of course we have been very concerned, as nothing has changed in his diet or activity level, so we contacted his doctors in Chapel Hill. In the past, the endocrine team would not see Nicholas because he is not a “diabetic.” But we felt that this was something that needed to be looked at. The doctors in pulmonary and endocrine agreed.
They told us they could see him at 3pm this afternoon, so John picked Nick up from work, I left school and got on my way. Basically all they told us was that they couldn’t tell us anything today without running several bloodtests. They drew blood to test his insulin, and to get an average of what his levels have been over the past three months. It is amazing that they can do that. They are testing him for something else, but I can’t for the life of me remember what it is.
They also suggested that, while Nicholas is doing a great job with his intake on carbs, that he needs to be more conscious of the protein that he eats. He needs to include more protein with the carbs to try to balance them out. They also encouraged him to get back on a regular schedule with his feeds. Nicholas eats so much during the day, he has a hard time geting hooked up to his feeds over night. We have got to do better with them. This is also affecting his weight. When he was released form the hospital in July, he weighed 116 pounds. Today, he weighed 109…
They say the only other tests they can do is while he is experiencing the low blood sugars. If we don’t see an improvement, they may have to hospitalize him, wait for his levels to drop, and then run the tests. We really don’t want to have to do that.
So that’s what’s been going on today. We were back home by 8pmish. It was a LONG day. We are hoping that the suggestions they gave us will help. Thank you all for the comments, prayers, and good thoughts today.