Back From Camp

Nick had a GREAT week!  No blood sugar drops, meds taken, therapies done (for the most part), and no problems to report of.  Not to mention, the program and the speaker were absolutely awesome!  There’s nothing quite like a week at Caswell. 

I will try to post some pics later this week in the photo gallery.  I’m working on a skit and the slide show for their program Wednesday night – have to prioritize! 😉

Thank you so much for your prayers for him and the group as a whole this week.  We definitely felt the Holy Spirit moving and working through us.

Robin

Are We There Yet?

Except for toothbrush, toothpaste, and the kitchen sink, Nick is packed and ready to go to camp.  Miranda is already with my mama.  We will be loading up the vans at 8:30 in the morning.  I am taking my laptop for other things, but if I can get on the internet, I will try to post a picture or two.  🙂  I pray that everything will go smoothly and that we all have a great time. 

Some of you have been asked to be prayer partners for me and Nicholas this week.  I ask that you say a special prayer for him in that he is compliant with his treatments while we are there.  He is taking the week off from his tube feeds, so we are going to be focusing on sustaining his weight, his breathing treatments, and his physical therapy while he is on this antibiotic.  He has responded very well to the drug they have him on so we are already encouraged.  

Again, thank you guys for the thoughts and prayers this past week.  If I’m not able to get on this week I’ll be back in a few days.

Hi Ho! Hi Ho! It’s off to Camp We Go….

The doctor just emailed me and told me that Nicholas is growing Staph in his culture – nothing else.  He is growing about 2 million organisms per ml of fluid.  The low end would be 10,000 and the high end would be 20 million, so he definitely thinks it needs to be treated.  There is cause for concern because Nicholas has needed IV antibiotics more than ever this year so we need to be agressive with his treatments. 

Since he is supposed to go to camp next week, the doctor is going to put him on an oral antibiotic.  He wants to see him the next week after we get back.  If there is no change, he will be placed on IV antibiotics.  Another cause for concern is being able to keep up with his breathing treatments and physical therapy while he is at camp.  This is very important to his lungs being able to clear.

So while this is good that he gets to go to camp, we are still not out of the storm.  Having said that – I am thanking God that he is not growing anything new.  The staph is enough of a problem for him.  We are working out a schedule now to try to keep him on track with his treatments while he is at Caswell.  He is really gong to need the support of everybody next week to stay on schedule.

I just want to say thank you to all of you for your thoughts, comments, and prayers.  They are what we really need right now.  Even in the craziness of the week, we have seen God at work.  Nicholas is not growing anything new, he is still going to be able to go to camp, and even though she is having difficulty, Miranda has no cast.  Things could be alot worse and we are thankful for what we have been given.

Good grief!  Now we have to pack… 😉