Yesterday was a great day here on the Hill. We watched the Dookies lose to Georgia Tech and then we watched and heard the Tarheels in an awesome game against Miami. It was the best game ever! Nicholas needed a pick-me-up because he wasn’t feeling the best in the world yesterday morning.
Other than bood sugar issues, he’s had a pretty good weekend. They have added another antibiotic. This one is inhaled through a breathing treatment. He hasn’t been able to tolerate it in the past because he has floppy airways called bronchialmalaysia. With his airways already being this way, breathing the drug would make his airways collapse and he would cough more. They wanted to give it another try because it would put an antibiotic directly in the lungs. Tobramycin is a popular drug and he has taken it through his IV, so we know he is not having a reaction to the drug itself. He seems to be tolerating it pretty well so far. He is doing his regular breathing treatments to open up the airways, then the therapist comes in for his chest pt, and after all of that, he gets the inhaled TOBI.
The doctors are hoping this will help to get his lung function back up at least into the 60’s. Nobody likes the fact that they have been remaining down in the 50’s for a while.
So today, I am praying for continued weight gain, that the inhaled drug will help to open his airways more, that his lung function will climb higher than the 50’s, and that he can come home on Friday as planned. Thank you all so much for your prayers and support. It means a lot.