Today has been pretty much the same as yesterday. Nicholas went down at 1:30 for a lung function test. His numbers were up – from 46% to 55% – he was pushed very hard; to the point that he was having chest pain, so the person who does the test is going to talk to the doctors to let them know how the numbers were obtained and the condition of Nicholas when they were done.
At this point, I believe that we are still going to be here, but it will be interesting to see what the docs say. His appetite has increased dramatically. He is eating more and more on top of his feeds at night. He even at during his feeds last night.
That’s it for now. I will post more as it becomes available.