Lung Function Update

Nicholas went downstairs this afternoon for his repeat lung function test.  The test says that his lungs are functioning at 54%.  That’s down from 57%, but it is still pretty good.  We haven’t seen the doctors yet.  I think they are waiting for all the retests to be completed.  Regardless of what they say, we are thankful for the improvement.  God has truly blessed us.

They will probably retest nick again on Thursday, so those results will decide whether we can go home early or not.  We are praying that his numbers will continue to rise and that we can all be home together this coming weekend.  It would be a wonderful gift.

He is getting to the point where he is getting tired of the food and the antibiotics are causing him to begin to lose his appetite.  This is normal for him, but it doesn’t make anything easier.  He is hungry, but at the same time…he doesn’t want what they have up here.  It is very frustrating for him.  At least he is feeling better and he has been going to the playroom more.  He is exercising now and I hope he will go to the playroom this afternoon.  Getting out of this room is one of the best things for him.

That’s really all that’s going on.   I will post more when I know more.  🙂

Robin

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