Nicholas’ doctor has decided the best thing to do is to stop his IV antibiotics. Today marks the end of three weeks, which is how long normal IV therapy lasts. They are going to repeat his lung function today to see what the final number will be and we are going to go home sometime today.
We have alot to do before we leave because when we go home, Nicholas will be on a new drug. This drug has not yet been approved by the FDA. It is called Aztreonam Lisine for Inhalation – AZLI for short. They have permission to use it in clinical trials and NIcholas’ doctor is the head of this trial. He recieved a grant to be able to use it here. It will be an antibiotic that is given through a breathing treatment and has to be done in addition to the breathing treatments he already does. He does it for a month, stops for a month, on for a month and so on. They are very encouraged by the early results of the antibiotic. Nicholas is allergic to so many drugs that anything we can use will be a Godsend. Hopefully, it will help to cut down on the amount of hospital visits we have to have each year as well. They have to give him his first dose here before we can leave to make sure he’s not going to react to it.
We are thankful that we are going home and we are praying for good numbers from the lung function test and no reaction to the new drug. We should be home sometime tonight. 🙂