Nicholas Update

Well, Nicholas has just gone down for his lung function test.  His numbers are down to 53% which is lower than it was after the first week.  We have not talked to the doctor yet.  We are the first ones to have the results for this test since it is immediate, so we have to wait for them to see the results and get back to us.

I hate that the numbers are down, but I can’t say that I am surprised.  I know my child.  When he gets these allergy flare ups, they go straight to his chest.  We just have to wait now to see what the doctors think we should do.  Our doctor this week is Dr. Henry and she is a praying woman.  That in itself is encouraging…

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6 Responses to “Nicholas Update”

  1. Linda Michael Says:

    Robin,

    Is Nick in the hospital? Sorry to read the latest about Amie. So, so sorry! But we wish her peace that passes all our understanding — God’s perfect peace!

    I just e-mailed you a response to your personal one to me last evening, then I read the blog notes.

    Linda Michael
    another CF mom of Kristen Michael Jagodowski

  2. Susan Sturgill Says:

    I am sorry the numbers were not better. I agree with Michael, that I am glad that you are one of those mom’s that stands up for your child. You know them better than anyone and you know how their bodies react. Good for you!

    Don’t lose the faith!

    Kisses to Nick!

  3. AUNT STEPHANIE Says:

    I AM PRAYING FOR YOU GUYS MIGHTY HARD TODAY, SORRY I HEAR THE NUMBERS WHERE NOT UP. HOPE MIRANDA GETS BETTER NEWS AT THE DR TODAY. HOPE THAT YA’LL WILL BE HOME BY THE END OF THE WEEK. MUCH LOVE TO THE HILL!

  4. Karen Murray Says:

    I’m sorry the numbers were not up enough to send him home. I will pray his numbers start an uphill climb. Keep the faith! Karen

  5. Granny Says:

    Dr.Grant(89) always said a good mother knows what to tell a doctor/knows when her child is sick. Tell them what to do Robin,you are doing great job with Nicholas. Sorry the numbers are not up ,but there is a reason. Waiting to hear from Miranda…love you

  6. mikebatts Says:

    I’m sorry the results aren’t what we hoped for. I must say that on Saturday he seemed really clogged up. I am so thankful that you are one who is confident and knowledgeable, and won’t back down to know-it-all doctors who sometimes look for the easy way out. I’m praying for you Nick! Love you guys.


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