Wednesday Update

A few things have happened today.  First thing this morning the docs came in.  Different therapists and nurses had told them that Nicholas was miserable with a stuffy nose, runny nose, sneezing, sore throat, etc.  They had already decided to do the allergy testing but this was confirmation to them that it needed to be done. 

Because Nicholas has cf, he cannot take an antihistamine.  Those types of drugs dry up the mucous in his lungs and it gets stuck so it can’t come out.  So they gave him two different nasal sprays.  They did the skin test and it came back positive for aspergillus.  Yesterday I said that aspergillus is a fungus and one type is.  BUT this type is a mold.  It can be found in just about anything – especially dirt.  All of us probably have it in our lungs, but it doesn’t bother us unless we are allergic to it, and he is. 

They also started him on the prednisone today, which should definitely help with the allergy.  We know from now on that when his allergies flare up, if we do what we are doing now, we can probably prevent it from going to his chest.  That is awesome.  He had a few side effects from it at first – he was a little dizzy, weak in the knees, shaky, and he was wound up so tight, it was hilarious.  After a few hours, he was much better.  It definitely has already increased his appetite.  He gets double portions for his meals, and he has the nurses ask for third helpings of pudding (he’s had 4 cups today) and an additional TWO helpings of beef tips and noodles for supper.  So he has four helpings total. 😀 

By 8:30, he had crashed already.  Hopefully, we are on the right track and he will feel better soon – as far as the allergy thing goes.  He is feeling much better in general.  We just have to get that lung function up.

Robin

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11 Responses to “Wednesday Update”

  1. janese Says:

    re:John/Daddy
    awwwwww. That made my eyes water !! 😦
    I hope you all can be together real soon. We are praying for all of you.

  2. AUNT KIM Says:

    GOD IS GOOD!!
    THAT IS WONDERFUL NEWS.
    LOVE YOU GUYS
    KIM

  3. John/Daddy Says:

    I CAN’T WAIT TO SEE YOU BOTH. MIRANDA AND I MISS YOU SO MUCH. HOME IS NOT HOME UNTIL WE ARE ALL TOGETHER. LOVE DADDY.

  4. AUNT STEPHANIE Says:

    HELLO, HOPE YA’LL ARE HAVING A GOOD THURSDAY, I READ THE COMMENTS ABOVE AND SAW WHERE SOMEONE SAID SOMETHING ABOUT THE DRUG MEGACE, WE HAVE SEVERAL PAIENTS ON THAT DRUG HERE AND IT DOES WORK WELL, SO THAT MIGHT BE SOMETHING TO CONSIDER BUT SOUNDS LIKE HE’S DOING PRETTY GOOD RIGHT NOW WITH THE WEIGHT GAIN. I LOVE YA’LL~

  5. Susan Sturgill Says:

    You know Michael may be right about the weak knees from the nurses…. I saw the one that was doing his chest PT’s yesterday, and she was cute…. ;o)

    We enjoyed out visit. See you this Saturday!

    Love ya!

  6. Katey Ballard Says:

    Hi Robin!

    Thank you for your post on my blog. I’m really enjoying blogging and especially when I get to meet new CF families. Yes…I have been through a whole lot, but never regret any part of it. I hope Nick is doing better and ya’ll can go home soon! I know it’s tough and that’s a touch age to go thru when you have CF. And I feel for you on the weight issue. I hated to eat and my mom practically had to force food down me. I did the tube feedings as well. I finally started on Megace (have you heard of it)? It’s a hormone, but also used as an appetite stimulate. They use it a lot here in B’ham, AL. It was a miracle drug for me and I gained weight like crazy. I’ll be praying for a quick bounce back of lung functions so ya’ll can go home real soon. Thanks again for checking out my blog! I’ll keep watching for updates on your blog too!

  7. Granny Says:

    Glad to read of better day,thank-ful always to read that Nicholas wants more food. Prednisone is powerful drug and used for in many ways to help others. Thank God! Have great Thursday! love to all

  8. Robin Says:

    I know!!! Isn’t it cool!! I look at it everyday!!

  9. Wednesday Update Says:

    […] Wednesday Update He had a few side effects from it at first – he was a little dizzy, weak in the knees, shaky, and he was wound up so tight, it was hilarious. After a few hours, he was much better. It definitely has already increased his appetite. … […]

  10. mikebatts Says:

    Were those effects (dizziness, wobbly knees, wound up tight) from Prednisone or a good looking nurse! Just kiddin’ Nick! Glad you are eating a bunch and sleeping some. Thanks for the update. And Robin, somebody from India checked out my blog! Thanks for the map! Good night guys…

  11. Grandmama Says:

    Hope things will get better real soon. Love you all. grandmama


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