For the past couple of days, Nicholas has been feeling pretty yucky. Between the periactin and the nasal washes, he has been having fun days. Last night he had a REEALLY bad nose bleed – so bad that they called the doctor on call. He was passing huge blood clots. The doctor said that the nasal spray and he washes had obviously irritated an already inflamed nose so we needed to stop them for at least the morning to give his nose a chance to heal. He also said that if it started bleeding again and/or if it was worse – such as running blood – to call him back.
About 30 minutes later, we were calling the doctor back. His nose started bleeding again and it was dripping/running bleeding and he was passing blood clots again. We put ice and pressure on it and it finally clotted off and stopped. The doctor says that it was just because of the irritation, to not blow it, and that he didn’t think it was anything to be alarmed by because it was able to clot and stop.
They stopped the nasal spray and the nasal wash and the ENT docs will be by tomorrow to look at his nose again. I hope not with that camera thingy because that would be kind of crazy considering it would probably make his nose worse and it probably would bleed again. The pulmonary doctors are completely holding the nasal washes and sprays and they told Nick that if he didn’t want to do them anymore he didn’t have to – so of course he is not doing them anymore. Last night he said that it really burned him.
He had a bleed today too but it was because he forgot that he was supposed to avoid blowing his nose. It only bled a little before it stopped. So we are going to talk to the pulmonary and the ENT doctors tomorrow about his nose and his appetite – which is dropping off – to see where we go from here. They are checking is blood sugars a little more closely today to see if they could be the cause of his feeling poorly. They don’t think that is the case but they want to cover all their bases. I am still not sure when we will come home.
John went home today and Miranda is with Shawn and Susie Webb. Pray for my family as we are still spread to the corners of our area. I pray that God will heal Nicholas so we can go home soon, that John will have peace at home and try to rest, and that Miranda will continue to be satisfied where ever she goes. Thanks for the thoughts and prayers and thanks for checking in today.
Robin
Hospitalizations are a process for Nicholas. They place him on high dose antibiotics, a fierce regimine of physical therapy and excercise, and they monitor his weight. Unfortuantely, that makes it difficult for all of us because we just simply have to wait to see how he progresses.
